When you live With a Disease of Any Kind! By: PaleoBOSS Lady®
The other day while I was in the shower disgusted that LA is having rare horrific weather a blog post came to me. The mental conversation I was having I somehow suspect many others living with a disease might also engage in from time to time. This prompted me to think this might be a good time to share some tips and tricks I have learned in my life commitment toward changing the narrative to manifest my desired life outcome.
Due to an offshore hurricane we had rare 90% humidity for days which sucks a wet one. Living with Multiple Sclerosis this is not a good look and quite frankly just blows. My body has no ability to regulate temperature and overheats very easily. My most disabling MS attack was a result of a morning walk along the beach in 2001 when the humidity was high and my body was unable to cool down resulting in one of the worst health nightmares of my life to date. #ohitgetswild
For the last few months I have been walking along the waters edge about 3 days a week for my movement, mindfulness and grounding work. I so look forward to this more than any other part of my day because that is how I roll. Sadly I have had to curtail this due to the weather and even though the weather is not as severe I am still unable to resume. It is just over the edge of acceptable humidity levels for my body even at 60%.
Every morning I wake up hopeful as a mother and then realize that not only can't I walk I also should not really be do much during warm weather conditions. So not a good look on any freaking level. Which for anyone who knows me personally knows this is a hard ass thing for this Type A overachiever!
As a result I have literally caught myself several times a day having these types of conversations with myself: "It's only 70% humidity in the afternoon I got this?" or "If I am walking before the sun is up that is a good look?" and finally the most rational "California humidity is not like the east coast humidity cause this is the best damn coast." All of these are unhealthy conversations that if acted upon could potentially have an outcome that could set me back or worse yet change the landscape of my current independent life in a heartbeat.
Living with disease always presents the risk of making a "false move" and how it tends to effect our lives longer than we ever imagined. I never in my wildest dreams would have believed that a walk on the beach on a humid day in 2001 would take almost 14 years to recover from!
How does one avoid these often life changing "false moves" when living with disease of any kind? #damnit
While in the shower mind racing a mile a minute I put together my:
Top 5 TIPS for Living with Chronic Disease
1. Define Your Desired Life Outcome: As my dear friend, hero and mentor, Dr. Terry Wahls, talks about in her book The Wahls Protocol real change has to come from an internal motivating source to be successful. The best way to attain this level of success it to focus on identifying our higher purpose or desired life outcome.
Engage in conversation with yourself to really define a desired life outcome is key to thriving in the face of disease. Without conscious conversation defining dreams and desires life runs on autopilot and many of us become victims of our disease rather than peacefully co-existing.
2. Develop an Action Plan: Once you have defined a higher purpose how are you going to get there? Break down the steps with a well defined action plan for the most successful outcome. Making sure each step maintainable and sustainable. These two aspects are key to the success of this step.
Often many of us go from nothing to "all in" and this seldom works. Small, consistent and well thought out action toward a desired outcome lends itself to a higher rate of sustainable success. Rather than jump head 1st without a parachute it is best to go slow and steady with a well defined path. Plot out baby steps up the latter to success and be willing to change course as needed.
3. Build Community: Community is the ground in which I stand and responsible for my current miracle status. Without the support of community most challenges in life become mountains many of us cannot climb. The support of friends, family, organizations and groups are key to any life successes.
Often when living with disease one feels isolated and alone. By seeking and engaging in community you can quickly overcome feelings of loneliness and defeat to begin taking steps toward effectively manifesting a higher purpose.
4. Changing the Narrative: Being open to changing the lens in which you view all things to accommodate and peacefully coexist with disease is a key element to success. Many times we are so fixated on what we already know we forget to ask about what we don't. When we allow ourselves to be comfortable with a fluid narrative the path to higher purpose is more like a tree that grows around something in it's way, but continues to grow instead of slowing dying due to the obstacle before it.
5. Get Conscious: Most of us live an unconscious life and you have heard me say it time and again. Without owning our life and actions chronic disease is in the driver seat and you are the passenger. The status quo is not an effective way to manage any disease. By questioning the status quo you allow your person to often think outside the box and open yourself up to idea's that often would be missed or overlooked by an unconscious existence.
If PaleoBOSS Lady had not been searching the internet for nutrition based outcomes for MS I never would have found Dr. Wahls Tedx Talk which laid the foundation for the miracle I am today. In questioning the status quo I was able to find my hero and miracle outcome.
They say 1 in 3 are projected to be disabled by 2018 whereas today about 1 in 5 are disabled. Many of us live with this reality due to our unconscious acts in our autopilot life and are living in a world based on consumer driven idea's only. If each of us would begin to really question simple things like:
What time we go to bed?
How many hours of sleep we have?
What we eat for our meals?
How many meals we have a day?
What we apply to our bodies, brush our teeth with and the list goes on we might find out that a lot of these things would not be happening in the way they are now which often will produce a different outcome. The simple act of questioning the status quo many times produces the outcomes needed to manifest your life.
Applying all 5 of these idea's are required for my miracle life and I would venture to believe the same would hold true for each of us. This process and practice is a daily initiative that defines my person and my day.
As often happens we experience unexpected outcomes in addition to the intended and it seems these steps would hold true in this regard. I am not going to lie and let you in on a little known secret: living with disease in this way simplifies life! Yup! Which is an oxymoron when you are compromised and especially as you age.
When you question the status quo everything somehow becomes simple, pure and innocent and life becomes fresh and essential. Life becomes something you LIVE with your eyes wide open welcoming every second!
I already know you are like, "Wow this blog is great and I want to sign up!"
Thank you and I am honored you want to join the PBL party. We are going to have fund raising consciousness and eyebrows at the same time.
Double Damn it.